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Welcome to Patient Empowerment Pulse: Your Guide to Becoming Your Own Best Advocate

  Check out our storefront for self-advocacy tools and consultations. Or leave us a tip to show your support. Welcome to Patient Empowerment Pulse: Real-Life Wisdom from a Professional Patient Who I Am Welcome to Patient Empowerment Pulse, a blog built on the hard-won wisdom of someone who’s lived both sides of the healthcare divide. I’m Joanna, and this is more than just a health blog—it’s a survival guide for anyone trying to navigate chronic illness, complicated care teams, and a medical system that often feels like it’s working against you. I didn’t set out to become a professional patient. I trained for a career in culinary arts. But life had other plans. Over the years, I was diagnosed with lupus, Sjögren’s syndrome, spondylitic arthritis, inflammatory-onset diabetes, and a growing list of related conditions. That’s when I discovered that all my professional training didn’t fully prepare me for what it means to actually live this every day. This blog is where I share the str...
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Understanding Depression & Anxiety: A Guide for Families, Friends, and the Newly Diagnosed

Mental health conditions don’t always get recognized as chronic illnesses—but they absolutely can be. Depression and anxiety aren’t fleeting moods or personal weaknesses. For many of us, they are long-term conditions that impact sleep, energy, focus, relationships, and even physical health. This guide is for anyone who lives with mental health challenges—or loves someone who does. It’s about building compassion, shedding stigma, and offering real tools for daily life. What Do We Mean by Depression and Anxiety? These terms are often used casually, but clinically: Depression involves persistent sadness, loss of interest in activities, low energy, guilt, or hopelessness that lasts at least two weeks Anxiety disorders involve excessive worry, tension, or fear that interferes with daily life Both can cause physical symptoms—tightness in the chest, fatigue, nausea, brain fog, disrupted sleep, chronic pain, or GI distress. And both can become chronic conditions, especially when...

Understanding Chronic Pain Conditions: A Guide for Families, Friends, and the Newly Diagnosed

  Pain is supposed to be a warning signal—a temporary message from the body that something needs attention. But for millions of people, pain doesn’t go away. It lingers, evolves, and weaves itself into everyday life. Chronic pain is a condition in its own right, and it can affect every system of the body and every corner of a person’s world. This guide is written for those living with chronic pain, and for the people who love them. Whether the pain comes from fibromyalgia, nerve damage, autoimmune illness, migraines, or an injury that never healed, the realities are often invisible—and very real. What Is Chronic Pain? According to the CDC, chronic pain affects over 50 million adults in the U.S. alone—more than heart disease, diabetes, and cancer combined. It is a major public health issue, yet still under-recognized in medical training and policy. The National Institutes of Health (NIH) has emphasized the need for more research and patient-centered care models that validate liv...

Understanding Chronic Respiratory Illness: A Guide for Families, Friends, and the Newly Diagnosed

Breathing is so automatic, so constant, that it’s easy to take for granted—until something makes it hard. Chronic respiratory illnesses disrupt one of the most fundamental acts of living. From asthma to COPD, these conditions affect millions of people and can make everyday activities feel like uphill climbs. This guide is here to help explain what it’s like to live with chronic respiratory disease, how to offer meaningful support, and what strategies can help people breathe easier—literally and emotionally. What Falls Under Chronic Respiratory Illness? There are many forms, but some of the most common include: Asthma: Chronic inflammation of the airways, often triggered by allergens, exercise, or cold air Chronic Obstructive Pulmonary Disease (COPD): Includes chronic bronchitis and emphysema; typically progressive and worsens over time Bronchiectasis: Permanent airway damage that leads to mucus buildup and infections Pulmonary Fibrosis: Scarring of the lung tissue t...

Understanding Arthritis: A Guide for Families, Friends, and the Newly Diagnosed

  When people hear the word arthritis, they often picture stiff fingers or aging joints—but the truth is far more complex. Arthritis is not a single condition, but a broad category that includes more than 100 types of joint disease. It can strike people of any age, cause serious pain and disability, and often exists alongside other chronic illnesses. I live with multiple forms of arthritis myself—including inflammatory spondyloarthritis and overlapping autoimmune features. This guide draws from both personal experience and research to help demystify arthritis, build understanding, and offer support strategies that truly make a difference. What Is Arthritis, Really? At its core, arthritis refers to inflammation of the joints—but that inflammation can have many causes. Here are the most common forms: Osteoarthritis (OA): The "wear and tear" form, where cartilage breaks down over time. Rheumatoid Arthritis (RA): An autoimmune condition where the immune system attacks...

Understanding Hypertension: A Guide for Families, Friends, and the Newly Diagnosed

 High blood pressure—also known as hypertension —is one of the most common chronic conditions in the world. It’s often called the "silent killer" because it typically has no obvious symptoms, yet it raises the risk of heart attack, stroke, kidney failure, and other serious complications. In this guide, we’ll demystify hypertension, explore the hidden challenges it brings, and offer practical, compassionate ways to support someone living with this condition. What Is Hypertension? Hypertension occurs when the force of blood against the artery walls is consistently too high. Blood pressure is measured using two numbers: Systolic pressure (top number): pressure during a heartbeat Diastolic pressure (bottom number): pressure between heartbeats A normal reading is typically under 120/80 . A reading of 130/80 or higher is considered hypertensive according to current guidelines ( AHA, 2017 ). Hypertension Is Not Your Fault One of the most damaging myths about high blo...

Understanding Diabetes: A Guide for Families, Friends, and the Newly Diagnosed

Diabetes is one of the most common chronic conditions in the world—but for many, it remains misunderstood. More than just a matter of "too much sugar," diabetes is a complex metabolic disorder that affects how the body processes energy, regulates blood sugar, and responds to inflammation. In this guide, we’ll explore what it really means to live with diabetes, how loved ones can offer meaningful support, and practical strategies for thriving despite the diagnosis. What Is Diabetes? Disclaimer: This article is intended for educational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. Always consult with a qualified healthcare provider for personalized medical guidance and care. There are several types of diabetes, but the most common is Type 2 Diabetes , followed by Type 1 Diabetes and Gestational Diabetes (which occurs during pregnancy). In all forms, the core issue is that the body struggles to regulate glucose (sugar) in th...

Pooping Like a Champ: The Unsung Art of Digestive Greatness

  Let’s be honest—nothing ruins your day faster than a digestive system that refuses to cooperate. Whether you’re living with an autoimmune condition, battling brain fog, or just trying to live your best life, regular, healthy poops are foundational to everything . So let’s drop the shame and raise a glass (of water) to your colon’s most noble task. What Does a “Champion Poop” Even Look Like? According to the Bristol Stool Chart (yes, that’s a thing), the gold standard is a smooth, sausage-shaped poop that’s soft but not mushy, easy to pass, and leaves you feeling done . If you’re straining, sitting forever, wiping endlessly, or visiting the porcelain throne 8 times a day—your gut might be calling for backup. Step 1: Hydration is Queen, King, and Court Jester Water is the unsung hero of healthy bowel movements. Your colon’s job includes reabsorbing water, so if you’re running dry, you’ll end up with poops like little cannonballs. Aim for at least half your body weight in ounc...