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Welcome to Patient Empowerment Pulse: Your Guide to Becoming Your Own Best Advocate

  Check out our storefront for self-advocacy tools and consultations. Or leave us a tip to show your support. Welcome to Patient Empowerment Pulse: Real-Life Wisdom from a Professional Patient Who I Am Welcome to Patient Empowerment Pulse, a blog built on the hard-won wisdom of someone who’s lived both sides of the healthcare divide. I’m Joanna, and this is more than just a health blog—it’s a survival guide for anyone trying to navigate chronic illness, complicated care teams, and a medical system that often feels like it’s working against you. I didn’t set out to become a professional patient. I trained for a career in culinary arts. But life had other plans. Over the years, I was diagnosed with lupus, Sjögren’s syndrome, spondylitic arthritis, inflammatory-onset diabetes, and a growing list of related conditions. That’s when I discovered that all my professional training didn’t fully prepare me for what it means to actually live this every day. This blog is where I share the str...
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Empower Your Healthcare Journey – Patient Empowerment Pulse Ko-Fi Store

 


At Patient Empowerment Pulse, we believe that knowledge is power when it comes to managing your health. That’s why we’ve created practical, patient-focused resources to help you track your medical history, communicate effectively with doctors, and advocate for your own care. You can access these tools through our Ko-Fi store at ko-fi.com/patientempowermentpulse

What’s Available in the Store?

Our resources are designed to help patients, caregivers, and chronic illness warriors take control of their medical care and navigate the healthcare system with confidence.

 Current Offerings:

My Care Companion – Patient History Booklet (15+ Page Fillable & Printable PDF) – A structured, easy-to-use medical history booklet that allows you to keep track of vital information, including medications, diagnoses, symptoms, family history, and ongoing concerns. Designed to improve doctor-patient communication and help you stay organized.

Email Consultation (Personalized Patient Advocacy & Healthcare Navigation Guidance) – Have questions about advocating for yourself in the healthcare system? Need tips on organizing medical information or preparing for appointments? Get an in-depth email consultation tailored to your needs.

1-Hour Zoom Consultation (One-on-One Patient Advocacy Support) – If you need more in-depth support, a live Zoom session can help you develop an advocacy plan, organize medical records, and prepare for difficult conversations with healthcare providers.

Buy Me a Coffee – If you find our content helpful and want to support more patient-centered resources, buy me a coffee to help fuel more advocacy tools and insights.

Coming Soon:

Doctor Visit Prep Toolkit (PDF Download) – A step-by-step guide to preparing for medical appointments, including checklists, question prompts, and tips for getting the most out of limited appointment time.

Symptom & Flare Tracker (PDF Download) – A structured tracking system to help identify patterns, triggers, and trends in chronic illness symptoms, improving discussions with healthcare providers.

Future Plans: A Patient Empowerment Guidebook

We are in the early stages of developing a comprehensive book on patient advocacy and healthcare navigation, filled with strategies for communicating with doctors, handling medical gaslighting, and taking control of your healthcare journey. Stay tuned!

How Your Support Helps

Every Ko-Fi purchase helps sustain Patient Empowerment Pulse, allowing us to continue creating practical tools and resources for patients who need them most. If you’ve found value in our work, consider supporting the store so we can expand and refine these critical advocacy tools.

🔗 Visit the store here: ko-fi.com/patientempowermentpulse

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