Welcome to Patient Empowerment Pulse: Real-Life Wisdom from a Professional Patient Who I Am Welcome to Patient Empowerment Pulse, a blog built on the hard-won wisdom of someone who’s lived both sides of the healthcare divide. I’m Joanna, and this is more than just a health blog—it’s a survival guide for anyone trying to navigate chronic illness, complicated care teams, and a medical system that often feels like it’s working against you. I didn’t set out to become a professional patient. I trained for a career in culinary arts. But life had other plans. Over the years, I was diagnosed with lupus, Sjögren’s syndrome, spondylitic arthritis, inflammatory-onset diabetes, and a growing list of related conditions. That’s when I discovered that all my professional training didn’t fully prepare me for what it means to actually live this every day. This blog is where I share the strategies, hard-earned insights, and practical tools I’ve picked up along the way—not just from books and degre...
Introducing Your New Essential Health Tool!
Managing your health can feel overwhelming, especially when you're juggling appointments, medications, and symptoms across multiple providers. That's why I've created the My Care Companion: Patient History Booklet — a simple, organized way to keep all your essential health information in one place.
What It Includes:
- Personal Info & Emergency Contacts
- Complete Medication List
- Diagnosis & Medical History
- Care Team Directory
- Symptom Tracking
- And more!
Whether you're preparing for a doctor visit, coordinating care, or simply trying to keep your records straight, this fillable booklet is designed to empower you. I've purposely priced it at $5 to allow everyone to access it. Please feel free to email me if you cannot afford the cost of Ko-Fi.
Available now on Ko-fi: https://ko-fi.com/s/7b438f904c
Stay organized. Stay empowered.
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