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Welcome to Patient Empowerment Pulse: Your Guide to Becoming Your Own Best Advocate

  Check out our storefront for self-advocacy tools and consultations. Or leave us a tip to show your support. Welcome to Patient Empowerment Pulse: Real-Life Wisdom from a Professional Patient Who I Am Welcome to Patient Empowerment Pulse, a blog built on the hard-won wisdom of someone who’s lived both sides of the healthcare divide. I’m Joanna, and this is more than just a health blog—it’s a survival guide for anyone trying to navigate chronic illness, complicated care teams, and a medical system that often feels like it’s working against you. I didn’t set out to become a professional patient. I trained for a career in culinary arts. But life had other plans. Over the years, I was diagnosed with lupus, Sjögren’s syndrome, spondylitic arthritis, inflammatory-onset diabetes, and a growing list of related conditions. That’s when I discovered that all my professional training didn’t fully prepare me for what it means to actually live this every day. This blog is where I share the str...

You're Not Faking: Understanding Masking in Chronic Illness



If you've ever been told, "You don't look sick," or had your need for rest questioned, you're not alone. Living with a chronic illness often means navigating a world that doesn't see the battles you fight daily. One coping mechanism many of us develop is called masking—the act of concealing our symptoms to appear "normal" to others.

I remember when my symptoms first began. I mustered the courage to ask my employer for a day off due to illness. Her response? "You sure do get sick a lot." That remark stung, planting seeds of doubt and guilt. Was I really that sick? Was I just being weak? This internal conflict led me to mask my symptoms, pushing through pain and fatigue to meet expectations.

What I didn’t understand then was that this wasn’t a personal failure—it was a learned response. A strategy I’d developed after absorbing messages from doctors, coworkers, and even friends who implied that I was exaggerating. If I could just act fine, maybe they’d believe I was strong. Maybe I’d even start believing it myself.

What Is Masking?

Masking involves hiding the true extent of your symptoms to blend in or meet societal expectations. It's a survival tactic, allowing us to navigate social and professional environments without drawing attention to our struggles. While it might seem like a helpful short-term solution, masking can have long-term consequences on both mental and physical health.

According to the Cleveland Clinic, masking is a way of presenting yourself to hide your flaws or appear more capable. It's often discussed in the context of autism, but the concept also applies to chronic illness and disability more broadly (Cleveland Clinic).

Another article published by the NIH notes that masking can increase stress, anxiety, and depressive symptoms, particularly in individuals who already feel socially isolated or misunderstood (NIH Study).

People mask for different reasons: to keep their jobs, to avoid awkward conversations, to protect themselves from being seen as unreliable or dramatic. But every time we do it, we distance ourselves a little more from what our bodies are truly trying to say. Over time, that disconnect can become painful.

The Toll of Masking

Constantly masking your symptoms can lead to:

  • Emotional Exhaustion: Pretending to be well drains your mental energy, leaving you feeling depleted.

  • Delayed Treatment: Ignoring or downplaying symptoms may prevent you from seeking timely medical care.

  • Strained Relationships: Friends and family might not understand the severity of your condition if you're always putting on a brave face.

Many of us become so good at masking that we even start to gaslight ourselves. We question whether our needs are valid, or if we’re just being dramatic. That spiral is damaging—and it’s not your fault.

And here's the kicker: society often rewards masking. If you show up and perform, you're seen as "strong." If you cancel or ask for help, you're seen as unreliable. That double standard keeps many of us stuck in a loop where we only feel safe when we’re pretending.

Breaking the Cycle

If you’ve been masking for years, the idea of unmasking can feel overwhelming. That’s completely normal. You don’t have to do it all at once—and you don’t have to do it alone.

Many people find it helpful to work with a licensed therapist who understands the emotional toll of chronic illness. Having a safe space to unpack those layers of guilt, fear, and survival patterns can be life-changing. If therapy hasn’t felt accessible or relevant in the past, this might be a different entry point: not to fix you, but to support the version of you that’s been carrying so much alone.

It's essential to recognize the harm masking can cause and take steps toward authenticity:

  1. Acknowledge Your Feelings: It's okay to admit that you're struggling. Your experience is valid.

  2. Communicate Openly: Share your challenges with trusted friends, family, or colleagues. Educating them can foster understanding and support.

  3. Seek Professional Help: Therapists can provide strategies to cope with the pressures that lead to masking. Cognitive Behavioral Therapy (CBT), in particular, has been shown to help unlearn harmful thought patterns (Mayo Clinic).

  4. Practice Gentle Honesty: You don’t have to share everything with everyone. Start with safe people. A simple, “I’m actually not doing great today” can be a powerful first step.

  5. Celebrate Unmasking Moments: Every time you allow yourself to rest, to say no, to speak honestly—you’re practicing a kind of healing that deserves recognition.

Final Thoughts

You don’t have to prove your illness to anyone. You don’t have to fake wellness just to make others comfortable. And you certainly don’t need to justify your need for rest, boundaries, or care.

You are not lazy. You are not exaggerating. You are not faking.

You’re masking. And now that you see it, you can begin to unmask—at your own pace, in your own time.

You deserve to be known as you are, not as who the world expects you to pretend to be.


Looking for tools to help communicate your symptoms more clearly or track your health over time? Check out our Ko-Fi store for printable trackers and resources designed to support you.

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