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Welcome to Patient Empowerment Pulse: Your Guide to Becoming Your Own Best Advocate

  Check out our storefront for self-advocacy tools and consultations. Or leave us a tip to show your support. Welcome to Patient Empowerment Pulse: Real-Life Wisdom from a Professional Patient Who I Am Welcome to Patient Empowerment Pulse, a blog built on the hard-won wisdom of someone who’s lived both sides of the healthcare divide. I’m Joanna, and this is more than just a health blog—it’s a survival guide for anyone trying to navigate chronic illness, complicated care teams, and a medical system that often feels like it’s working against you. I didn’t set out to become a professional patient. I trained for a career in culinary arts. But life had other plans. Over the years, I was diagnosed with lupus, Sjögren’s syndrome, spondylitic arthritis, inflammatory-onset diabetes, and a growing list of related conditions. That’s when I discovered that all my professional training didn’t fully prepare me for what it means to actually live this every day. This blog is where I share the str...

Understanding Diabetes: A Guide for Families, Friends, and the Newly Diagnosed

Diabetes is one of the most common chronic conditions in the world—but for many, it remains misunderstood. More than just a matter of "too much sugar," diabetes is a complex metabolic disorder that affects how the body processes energy, regulates blood sugar, and responds to inflammation. In this guide, we’ll explore what it really means to live with diabetes, how loved ones can offer meaningful support, and practical strategies for thriving despite the diagnosis. What Is Diabetes? Disclaimer: This article is intended for educational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. Always consult with a qualified healthcare provider for personalized medical guidance and care. There are several types of diabetes, but the most common is Type 2 Diabetes , followed by Type 1 Diabetes and Gestational Diabetes (which occurs during pregnancy). In all forms, the core issue is that the body struggles to regulate glucose (sugar) in th...

Pooping Like a Champ: The Unsung Art of Digestive Greatness

  Let’s be honest—nothing ruins your day faster than a digestive system that refuses to cooperate. Whether you’re living with an autoimmune condition, battling brain fog, or just trying to live your best life, regular, healthy poops are foundational to everything . So let’s drop the shame and raise a glass (of water) to your colon’s most noble task. What Does a “Champion Poop” Even Look Like? According to the Bristol Stool Chart (yes, that’s a thing), the gold standard is a smooth, sausage-shaped poop that’s soft but not mushy, easy to pass, and leaves you feeling done . If you’re straining, sitting forever, wiping endlessly, or visiting the porcelain throne 8 times a day—your gut might be calling for backup. Step 1: Hydration is Queen, King, and Court Jester Water is the unsung hero of healthy bowel movements. Your colon’s job includes reabsorbing water, so if you’re running dry, you’ll end up with poops like little cannonballs. Aim for at least half your body weight in ounc...

Chronic Illness and the Guilt Spiral: How to Break the Cycle

  When you live with chronic illness, you’re not just battling symptoms—you’re often battling guilt. Guilt for canceling plans. Guilt for not working enough. Guilt for needing help. Guilt for not being the version of yourself you used to be. And that guilt? It spirals. One bad day turns into two, then three. You start judging yourself for how much time you’ve “lost,” and suddenly you’re not just sick—you’re ashamed. Let’s pause that spiral right here. Because guilt is not proof of failure. It’s a signal that you care—and caring is not a weakness. Where Guilt Comes From (It’s Not Just You) Guilt doesn’t come from nowhere. For many of us, it’s the result of growing up in a culture that glorifies productivity and independence. We’re taught that rest must be earned, that self-worth is tied to output, and that asking for help is a weakness. When you live with chronic illness, those values can become weapons turned inward. I used to believe that if I couldn’t contribute in obvious,...

Tracking Energy Instead of Pain: A More Empowering Metric

Intro When you live with chronic illness, pain is usually the first thing doctors ask about—and the first thing we’re told to measure. But over time, you start to realize something: pain might not be the best lens for understanding your day-to-day life. The better question might be: “What could I do today, and what did it cost me?” This article is for those of us who’ve been at this a while—who’ve got symptom logs, spreadsheets, and war stories—but still feel unseen. If you’ve ever felt like pain is only part of the picture, you’re not imagining it. Especially for conditions like lupus, ME/CFS, dysautonomia, or inflammatory arthritis, energy is often the truer signal. This isn’t theory. I’ve lived this shift—and watched it change everything from my care plans to my self-compassion. If you’re wondering how to track chronic illness symptoms in a way that actually helps, this might be your missing metric. The Problem With Pain Scores Pain scales have a role, but let’s be honest—th...

Why I Switched to Seresto: Managing Pets When You’re Chronically Ill

Caring for pets is a joy—but also a responsibility that doesn’t pause when your health takes a hit. For those of us living with chronic illness, even small tasks like applying monthly flea prevention can become exhausting. Some days, even opening the tube feels like too much. That’s why I switched to the Seresto flea and tick collar for cats . And after three months of testing it on all three of my cats, I’m not going back. The Problem: Monthly Flea Treatments Weren’t Sustainable If you’ve ever tried to wrangle a squirmy cat while opening a tiny tube of flea medication, you already know the drill: you lose half the dose to fur displacement, your cat bolts under the couch, and you’re left wondering if any of it actually made contact with their skin. I used to dread flea med day. My hands would shake from fatigue. My hips would flare if I crouched too long. One month I forgot completely—because I was too busy recovering from an autoimmune crash. Now imagine doing that twelve times ...

The 6 Questions Every Specialist Should Be Able to Answer

When you live with a chronic illness, seeing a specialist isn’t just routine—it’s essential. But not all specialist appointments are created equal. Some leave you feeling seen and supported. Others leave you more confused than when you walked in. Over time, you learn that one of the most powerful tools in the exam room isn’t a lab test or scan—it’s the right question at the right time. Knowing what to ask can help you spot a provider who truly understands complex, long-term care—and avoid ones who might not be the right fit. These aren’t trick questions. They’re grounded, respectful, and the kind of things any thoughtful specialist should be ready to answer. If they aren’t? That’s data, too. Here are six questions that can help you build better conversations—and safer, more strategic care. 1. What is your experience with patients who have [condition] in combination with [other condition] or complications? Chronic illnesses rarely exist in isolation. Autoimmune diseases, metabolic...

The 7 Types of Fatigue (and Why Just 'Tired' Isn’t Enough)

  Not all fatigue is created equal. If you live with chronic illness, you already know this. But most people—including many healthcare professionals—treat “fatigue” like a catchall. It’s vague. It’s dismissive. And worst of all, it obscures the specific patterns that might actually help you manage your energy. This guide breaks fatigue down into seven distinct types, each with its own shape, trigger, and strategy. You may not experience all seven—but naming them helps you advocate for the kind of support you actually need. This is the language that helps you say, “This isn’t just tired. This is something deeper, and it deserves to be understood.” And if you’ve ever had someone look at you and say, “Yeah, I get tired too,” when your bones feel like concrete and your brain has melted into fog—this one’s for you. 1. Post-Exertional Fatigue Also known as: The Crash This is the type of fatigue that hits hours (or even a day) after physical or mental effort. It’s a signature symp...

What Is Inflammation, Really? A Chronic Illness Guide to the Most Misused Word in Wellness

  "Inflammation" gets thrown around like it means everything and nothing at once. In the wellness world, it’s blamed for everything from fatigue to foggy brain to aging skin. In the medical world, it’s a key player in countless chronic conditions—yet often underexplained. If you’ve ever left a doctor’s appointment with vague references to inflammation but no clear plan, or been told by a wellness influencer that celery juice will cure it, this guide is for you. Let’s unpack what inflammation actually is, what it does in the body, how it differs across chronic illnesses, and what you can do when it won’t go away. For a scientific breakdown of the inflammatory process, check out the NIH overview on inflammation . The Two Faces of Inflammation: Acute vs. Chronic Acute inflammation is your body’s emergency response team. It shows up fast—think swelling around a sprained ankle or redness around a paper cut. It’s protective, short-term, and usually resolves once the threat is...

Track What Matters: A Gentle, Printable Symptom Tracker for Chronic Illness

Living with a chronic illness means living with constant variables—flares that come out of nowhere, energy that evaporates before noon, and appointments where you’re expected to remember everything. It’s exhausting. That’s why I created this monthly printable symptom tracker: a single, calming page you can print and use as often as you need. No apps. No log-ins. No tiny boxes or clinical overwhelm. Just a clear, compassionate tool for real life. Why Tracking Matters When you live in a body that doesn’t play by the rules, your patterns are your power. Tracking gives you: A clearer sense of what’s improving or declining Data you can share with your care team A sense of rhythm, even on chaotic days Peace of mind that you’re not imagining things But traditional trackers? They’re often overwhelming or built for people with totally different needs. I wanted something spoonie-friendly, binder-ready, and nonjudgmental. What Makes This One Different This tracker was designed for...

You’re Not Lazy, You’re Inflamed: Understanding Motivation in Chronic Illness

  If you’ve ever asked yourself, Why can’t I just make myself do things? , you’re not alone. Many people living with chronic illness struggle with motivation—not because they lack willpower, but because their bodies are under stress that disrupts normal neurological and metabolic function. Here’s the truth: When you’re dealing with fatigue, inflammation, pain, and dysregulation, your brain isn’t prioritizing goals and rewards. It’s prioritizing survival. Let’s look at why that happens, and how to reframe the conversation around motivation in a chronically ill body. 1. Inflammation Affects the Brain—Including Motivation Centers Chronic inflammation doesn’t just affect joints or organs. It affects the brain itself—specifically the parts that regulate motivation, reward, and executive function. Inflammatory cytokines disrupt dopamine pathways, which control goal-seeking behavior Studies show that increased inflammation correlates with reduced energy, drive, and cognitive endu...

5 Health Metrics That Actually Matter When You’re Chronically Ill (Not Just ‘Steps Per Day’)

  If you live with chronic illness, you’ve probably been told to track your steps, hit 10,000 a day, or burn more calories. But when your body is working overtime just to function, those metrics aren’t just unhelpful—they can be damaging. Here’s the truth: mainstream health trackers aren’t designed for people with autoimmune conditions, dysautonomia, chronic fatigue, or invisible disabilities. But that doesn’t mean data is useless. You just need to know which signals actually matter for your body. These five metrics are worth tracking to better understand your health, your energy patterns, and your recovery needs. 1. Heart Rate Variability (HRV) Why it matters: HRV measures the variation in time between heartbeats, and it’s one of the best indicators of how well your nervous system is regulating stress and recovery. Low HRV is associated with higher inflammation, pain, poor sleep, and crash cycles Trend tracking over time (not daily comparisons) gives insight into how you...

What Your Bloodwork Really Says About Your Health

Blood tests are one of the most powerful tools in modern medicine. They’re like a status report from inside your body, giving you real insight into your health—sometimes before you even feel that something’s off. Whether you’re managing a chronic condition, keeping tabs on your wellness, or trying to figure out why you’re so exhausted all the time, your bloodwork holds the answers. But let’s be honest: those lab reports? They look like a secret code written by scientists who forgot that the rest of us exist. Numbers, abbreviations, and ranges—what does it all mean? Is your cholesterol okay? Should you be worried about your white blood cell count? And why does every test seem to have at least one result that’s slightly outside the “normal” range? That’s where we come in. Think of this as your cheat sheet to understanding what your bloodwork is really telling you. We’ll break down the most common tests, explain what they measure, and help you connect the dots so you can be informed, emp...

Essential Tools for Comfort and Self-Advocacy in Healthcare

Living with a chronic illness or navigating the healthcare system can be exhausting—physically, mentally, and emotionally. We’ve been there, and over time, we’ve found a few tools that have made a real difference in managing symptoms, tracking health data, and making sure we’re taken seriously in medical settings. These aren’t just nice-to-haves; they’re things that have genuinely improved our quality of life. If you’re looking for ways to make your daily routine a little easier and advocate for yourself with confidence, here are some essentials that have helped us—and we hope they help you, too. 1. Omron Platinum Blood Pressure Monitor If you deal with blood pressure fluctuations, an accurate and reliable monitor is a must-have. The Omron Platinum Blood Pressure Monitor is one of the best on the market—it’s clinically validated, easy to use, and syncs with an app for tracking trends over time. I can’t tell you how many times I’ve had my blood pressure taken at the doctor’s office,...

Diabetes & Stress: How Cortisol Impacts Blood Sugar (and What to Do About It)

Introduction: The Blood Sugar-Stress Connection If you’ve ever checked your blood sugar after a stressful day and found it higher than expected, even though you ate the same foods and followed your usual routine, you’re not imagining things. Stress has a powerful effect on blood sugar levels, and the culprit behind these surprise spikes is a hormone called cortisol. When stress hits, your body goes into survival mode, flooding your system with cortisol and triggering a chain reaction that raises blood sugar levels. In small doses, this response is useful—it’s your body’s way of preparing for a challenge. But when stress becomes chronic, this cycle can wreak havoc on blood sugar control, making diabetes management even harder. So what can you do about it? In this guide, we’ll break down why stress causes glucose spikes, how cortisol plays a key role, and—most importantly—what you can do to keep it under control. 1. How Stress Causes Blood Sugar Spikes Your body’s stress response i...

How to Track Your Symptoms Like a Pro: A Guide for Chronic Illness Patients

Introduction: Why Symptom Tracking Matters When you’re living with a chronic illness, your symptoms don’t just affect your daily life—they also hold valuable clues about your health trends, treatment effectiveness, and potential triggers. But let’s be honest—tracking symptoms can feel like a chore. Between daily ups and downs, remembering to log everything can seem overwhelming. The good news? Symptom tracking doesn’t have to be complicated or time-consuming. With the right approach, it can become an effortless habit that empowers you to take control of your health, advocate for yourself at doctor’s appointments, and finally start spotting those elusive patterns in your condition. In this guide, we’ll break it down into simple, practical steps so you can start tracking smarter—not harder. 1. What Doctors Need to See vs. What Patients Notice Learn more about how doctors interpret symptoms differently for a deeper understanding of what matters most during consultations. If you’ve...