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Welcome to Patient Empowerment Pulse: Your Guide to Becoming Your Own Best Advocate

  Check out our storefront for self-advocacy tools and consultations. Or leave us a tip to show your support. Welcome to Patient Empowerment Pulse: Real-Life Wisdom from a Professional Patient Who I Am Welcome to Patient Empowerment Pulse, a blog built on the hard-won wisdom of someone who’s lived both sides of the healthcare divide. I’m Joanna, and this is more than just a health blog—it’s a survival guide for anyone trying to navigate chronic illness, complicated care teams, and a medical system that often feels like it’s working against you. I didn’t set out to become a professional patient. I trained for a career in culinary arts. But life had other plans. Over the years, I was diagnosed with lupus, Sjögren’s syndrome, spondylitic arthritis, inflammatory-onset diabetes, and a growing list of related conditions. That’s when I discovered that all my professional training didn’t fully prepare me for what it means to actually live this every day. This blog is where I share the str...

What Your Bloodwork Really Says About Your Health

Blood tests are one of the most powerful tools in modern medicine. They’re like a status report from inside your body, giving you real insight into your health—sometimes before you even feel that something’s off. Whether you’re managing a chronic condition, keeping tabs on your wellness, or trying to figure out why you’re so exhausted all the time, your bloodwork holds the answers. But let’s be honest: those lab reports? They look like a secret code written by scientists who forgot that the rest of us exist. Numbers, abbreviations, and ranges—what does it all mean? Is your cholesterol okay? Should you be worried about your white blood cell count? And why does every test seem to have at least one result that’s slightly outside the “normal” range? That’s where we come in. Think of this as your cheat sheet to understanding what your bloodwork is really telling you. We’ll break down the most common tests, explain what they measure, and help you connect the dots so you can be informed, emp...

5 Daily Habits to Reduce Chronic Inflammation (Backed by Science)

Chronic inflammation is at the root of many health conditions, from autoimmune diseases to heart disease, diabetes, and even cognitive decline. Unlike acute inflammation, which helps the body heal, chronic inflammation lingers, keeping the immune system in a constant state of overdrive. Over time, this leads to tissue damage, pain, and long-term health issues. The good news? You don’t need extreme interventions to turn things around. Small, consistent lifestyle changes can help calm inflammation and protect your health. They've made a big difference in my life, and they can help you as well. Let’s dive into five science-backed daily habits that can make a real difference. 1. Prioritize an Anti-Inflammatory Diet What you eat isn’t just fuel—it’s information for your body. Studies show that diets high in refined carbohydrates, processed meats, and trans fats contribute to increased inflammatory markers like C-reactive protein (CRP) and interleukin-6 (IL-6), while whole, nutrient-...

Biologics 101: What to Expect When Starting a TNF Inhibitor

Starting a TNF inhibitor like Humira, Enbrel, or Remicade can feel like a big step—especially if it’s your first time on a biologic. I know because I’ve just started my own journey with Humira, and let me tell you, there are a lot of emotions that come with it: hope, uncertainty, and a little bit of "please don’t let this be another failed treatment." These medications can be absolute game-changers for autoimmune and inflammatory conditions, but they also come with a learning curve. So, if you're wondering what to expect, how it will feel, and how to set yourself up for success, I’m right there with you. These medications are game-changers for many people with autoimmune and inflammatory conditions, but they also come with a learning curve.  What Is a TNF Inhibitor, and How Does It Work? TNF inhibitors (tumor necrosis factor inhibitors) are biologic medications that target TNF-alpha, a protein involved in the inflammatory process. For people with autoimmune conditions ...

The Chronic Illness Patient’s Guide to Fatigue: Why We’re Always Tired (and What Actually Helps)

If you’ve ever felt like no amount of sleep could make a dent in your exhaustion, you’re not alone. Chronic illness fatigue isn’t just being "tired." It’s that deep, bone-weary exhaustion that sticks around no matter how much you rest. For many of us, it can be just as debilitating as pain, turning even the simplest tasks into uphill battles. But why does it happen, and more importantly—what can we actually do about it? It’s more than just feeling tired—it’s a deep, bone-weary exhaustion that doesn’t go away with sleep. For many patients, this kind of fatigue is as debilitating as pain, making even the simplest tasks feel impossible. But why does it happen, and more importantly, what can we do about it? Why Chronic Illness Causes Fatigue Medical fatigue isn’t just about overdoing it or not getting enough rest—it’s a complicated mix of inflammation, nervous system glitches, and energy production issues that make everyday life feel like running a marathon with no finish lin...

Essential Tools for Comfort and Self-Advocacy in Healthcare

Living with a chronic illness or navigating the healthcare system can be exhausting—physically, mentally, and emotionally. We’ve been there, and over time, we’ve found a few tools that have made a real difference in managing symptoms, tracking health data, and making sure we’re taken seriously in medical settings. These aren’t just nice-to-haves; they’re things that have genuinely improved our quality of life. If you’re looking for ways to make your daily routine a little easier and advocate for yourself with confidence, here are some essentials that have helped us—and we hope they help you, too. 1. Omron Platinum Blood Pressure Monitor If you deal with blood pressure fluctuations, an accurate and reliable monitor is a must-have. The Omron Platinum Blood Pressure Monitor is one of the best on the market—it’s clinically validated, easy to use, and syncs with an app for tracking trends over time. I can’t tell you how many times I’ve had my blood pressure taken at the doctor’s office,...

Why Rest Is Productive: The Science of Recovery for Chronic Illness

Introduction You are not lazy for needing rest. You are not failing because your body demands more sleep than someone else’s. You are not weak for pausing to recover. Chronic illness means your body is working overtime just to exist. Rest is not a luxury—it’s a medical necessity. And yet, I know. I know how easy it is to feel like you should be doing more. I know how guilt creeps in when you take a nap, when you cancel plans, when you sleep longer than the people around you. But listen to me: your rest is productive. It is the single most powerful tool you have for managing symptoms, reducing flares, and keeping yourself functioning. You deserve it, and I am here to remind you why. 1. Your Body Is Working Harder Than You Think Why It Matters: Living with chronic illness is like running a marathon every day without training for it—except there are no water breaks, and no one else seems to realize how hard you’re running. Your immune system, nervous system, and organs are constant...

Navigating the Healthcare System When You’re Disabled

Introduction Navigating the healthcare system is challenging for anyone, but for disabled individuals, it can feel like an uphill battle. From inaccessible medical offices to doctors who don’t take symptoms seriously, the system often places an unfair burden on patients to fight for the care they deserve. But while the system may be flawed, there are strategies you can use to take control of your healthcare experience, advocate for yourself, and ensure you receive the treatment and respect you need. This guide will help you navigate the complexities of the healthcare system with confidence and clarity. 1. Get Organized Before Your Appointment Why It Matters: Doctors’ visits are often rushed, and many providers don’t have time to sift through your full medical history. If you’re not prepared, critical details can get overlooked, leading to miscommunication and inadequate care. How to Do It: Before your appointment, gather all relevant medical information in one place. We love mea...